Activity pacing is not the same as simply taking breaks or working until you can work no further. It is a learned skill that carries beliefs related to self worth, acceptance, empowerment, and independence. It is an important component of self management; and it promotes adaptive neuroplastic changes, and reduces disability.
When it comes to beliefs, facts don’t matter. Scientific data is insufficient to convince someone of a differing belief. “To make a change we must tap into those motives, presenting information in a frame that emphasizes common beliefs, triggers hope and expands people's sense of agency.” Dr. Tali Sharot,
It is imperative that people feel hopeful, not hopeless. The idea that symptoms vary, implies that something is influencing the change. If we can track symptom changes better, then we have an opportunity to decipher what may be contributing to that fluctuation.
It doesn’t tell me what a patient can do, how they feel, how they manage, if they need a break, if they are fulfilling their goals, or if they are able to participate in work, recreation, or social activities.